Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 2–Data Standards, Methods, and Policy (PDF)

By and Medicine National Academies of Sciences, Engineering, Division on Engineering and Physical Sciences, Health and Medicine Division, Division of Behavioral and Social Sciences and Education, Computer Science and Telecommunications Board, Board on Health Care Services, Committee on National Statistics, Committee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to 2030 The Office of the Assistant Secretary for Planning and Evaluation (ASPE), in partnership with other agencies and divisions of the United States Department of Health and Human Services, coordinates a portfolio of projects that build data capacity for conducting patient-centered outcomes research (PCOR). PCOR focuses on producing scientific evidence on the effectiveness of prevention and treatment options to inform the health care decisions of patients, families, and health care providers, taking into consideration the preferences, values, and questions patients face when making health care choices. ASPE asked the National Academies to appoint a consensus study committee to identify issues critical to the continued development of the data infrastructure for PCOR. The committee’s work will contribute to ASPE’s development of a strategic plan that will guide their work related to PCOR data capacity over the next decade. As part of its information gathering activities, the committee organized three workshops to collect input from stakeholders on the PCOR data infrastructure. This report, the second in a series of three interim reports, summarizes the discussion and committee conclusions from the second workshop, focused on data standards, methods, and policies that could make the PCOR data infrastructure more useful in the years ahead. Participants in the workshop included researchers and policy experts working in these areas.
Product Details

ASIN ‏ : ‎ B09ZYTYZ16
Publisher ‏ : ‎ National Academies Press (May 10, 2022)
Publication date ‏ : ‎ May 10, 2022
Language ‏ : ‎ English
Screen Reader ‏ : ‎ Supported